Wednesday, May 7, 2014

2014 Make CF History Charity Classic "CF Champion" Spotlight: Meet Matthew

Today's "CF Champion" spotlight is team Dayton's Matthew Nisky:

Matthew is 11 years old and was our first child.  We had a perfect pregnancy with no concerns, however quickly after his birth we realized that something was wrong.  Matthew was not gaining weight and was diagnosed with Failure to Thrive.  He was not able to keep his food down and was put on numerous medications to prevent him from throwing up and overall was a very unhappy baby.  Little we did would comfort him.  After 10 months of numerous doctors appointments and tests he was eventually diagnosed with Cystic Fibrosis.  While we were so scared of what his future would look like we were also feeling relieved to finally know what was going on with his little body.  Children's Hospital here in Columbus has become another home to our family and a great source of support as Matthew and his sister (who also has CF) spend a lot of time there.

Matthew has had numerous surgeries and hospitalizations over his 11 years due to CF complications, which include several sinus surgeries, tonsillectomy, adenoid removal and most recently a nissen surgery in November.  He also has had numerous PIC Lines in order to deliver antibiotics through an IV, the most recent being in October.  His lung function has increased since these two hospitalizations and we are happy to report that he continues to improve.  

While Matthew has Cystic Fibrosis, he is also a normal boy with normal boyhood dreams.  He LOVES sports and participates on basketball and baseball teams each year.  Despite his smaller size he also has the dream of playing football (I am trying to keep his focus on baseball and basketball as they are not as physical).  Matthew has a great sense of humor and loves to make people laugh, sometimes to the point that he cannot control his own laughter.  He attends Wilson Hill Elementary School and is in the 5th grade.  He has been on the Merit Roll each quarter.  This was obtained with little help from his parents as Matthew does not want any help with his studies!!  

This past year he was lucky to receive his Make A Wish.  Matthew wished for a family vacation and for the first time ever our family of four went on a vacation together.  It was one of the best weeks of all of our lives.  Matthew didn't sleep the night before he was so excited about going.  Atlantis was our destination and one day we all hope to return to that beautiful resort!  

Matthew does not like anyone knowing he has CF and will go to great lengths to hide this from everyone, however he also knows what the disease is and what it can do long term.  Matthew has the same dreams as everyone else, to live a long life and be healthy.  Our dream as his parents is for this to become a reality.

We cannot thank your team enough for taking the time out of your busy schedules to play and raise money for this disease's cure!!!

We thank you from the bottom of our hearts!!


The Nisky Family (Mark, Deanna, Matthew (11), and Maria (7))

Matthew is the son of one of the CF Foundation
 Board Members, Deanna Herold-Nisky.